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a campaign for a name change...
Oct. 7th, 2008 08:15 pm"CFS is a multi-system disease which causes extreme fatigue, muscle weakness, cognitive dysfunction, hypersensitivity, orthostatic intolerance, digestive disturbances, depression, poor immune response, and cardiac and respiratory problems.
According to the CDC, studies show that disability in CFIDS patients is comparable to multiple sclerosis, AIDS, lupus, rheumatoid arthritis, heart disease, end-stage renal disease, and chronic obstructive pulmonary disease.
Yet, studies have shown that patients diagnosed with “Chronic Fatigue Syndrome” are not taken as seriously as patients with the same symptoms but a different name for their diagnosis. Thus, the name CFS not only affects the quality of treatment patients receive, but the amount of money committed to research!"
-- blogger Catherine Morgan, about "Campaign for a Fair Name"
Imagine calling parkinson's disease "chronic shakiness" or Alzheimer's "chronic forgetfulness" and you might begin to understand how trivialized I feel on a daily basis.
According to the CDC, studies show that disability in CFIDS patients is comparable to multiple sclerosis, AIDS, lupus, rheumatoid arthritis, heart disease, end-stage renal disease, and chronic obstructive pulmonary disease.
Yet, studies have shown that patients diagnosed with “Chronic Fatigue Syndrome” are not taken as seriously as patients with the same symptoms but a different name for their diagnosis. Thus, the name CFS not only affects the quality of treatment patients receive, but the amount of money committed to research!"
-- blogger Catherine Morgan, about "Campaign for a Fair Name"
Imagine calling parkinson's disease "chronic shakiness" or Alzheimer's "chronic forgetfulness" and you might begin to understand how trivialized I feel on a daily basis.
